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SPEAKER BIOGRAPHIES

 

Dr. Bart Post

Dr. Post is a movement disorder neurologist in the Parkinson Centre in the Radboudumc in Nijmegen, Netherlands, where he is part of the steering committee of several large Parkinson trials: the LEAP-trial (Early administration of levodopa in de novo PD); and the CHEVAL-trial (administration of acetylcholine inhibitors in PD patients with hallucinations) and the Fair-Park trial (Iron chelation in early Parkinson’s Disease). He is a member of the Movement Disorders rating scale committee and the Multiple System Atrophy (MSA) Study Group. He has organized several masterclasses on parkinsonism and movement disorders and is a member of the Dutch guideline committees for the diagnosis and management of Parkinson’s disease and atypical parkinsonism. He is chair of the residency program for neurologists and co-director of the Parkinson Foundation center of excellence at Radboudumc. He has a special interest in patients living with Parkinson’s disease at a younger age and heads a program of co-creating care for this patient group. 

Click the link below to read more about his work with YOPD

https://www.parkinson.org/blog/COE/Radboud-University  

Nicolien Van der Kolk

Nicolien van der Kolk is a neurology resident at the Radboudumc, Nijmegen, Netherlands, who specializes in the treatment of persons with movement disorders including Parkinson’s disease. She studies the effects of exercise on Parkinson’s disease as part of her PhD project. She recently published the results of her aerobic exercise study, which received national and international media attention. The study showed the beneficial effect of exercise on motor disability was large enough to be clinically relevant and demonstrated that exercise is a very useful addition to medication in managing motor symptoms. 

More info on the study can be found in the link below.

 https://www.sciencedaily.com/releases/2019/09/190912112421.htm 

 

Anne Martin

My interest in Parkinson's started when I was a student nurse where I first became fascinated with the workings of the brain and spent my final year of my nurse training in Neurology. Since then my career has been vast and varied which includes spinal injuries, general Neurology, and caring for children with Autism as a special needs school nurse.
Eventually I moved into the world of Parkinsons starting off in care of the elderly but eventually moving on to specialise in
Young Onset Parkinsons.

 
 

Julie Walker

I was diagnosed at 44 in 2012 with young onset Parkinson's disease (YOPD). Today, seven years diagnosed, PD constantly challenges', but I try to remain positive and concentrate on what I can do, rather than dwelling on what I can’t.

In January 2017 I invented a word; Parkinality - Parkin(sons)(person)ality. I started a website about living with YOPD, www.parkinality.co.uk , initially to explain PD to friends, and to document my experiences. Hopefully letting others living with YOPD know that they are not alone dealing with this misunderstood condition. I often write with humour in the hope that people continue to read my writing, although read between the lines and I hope you see the deeper message.

 

Richelle Flanagan

Richelle has been a practising Dietitian for 15 years, 13 years of which she has run her own nutrition consultancy, Be Nutrition Wise, providing nutritional clinics for individual clients and consultation to businesses, NGO’s, education providers and sporting organisations. She was president and CEO of the Irish Nutrition and Dietetic Institute, the professional body for Dietitians in Ireland and having coeliac disease herself, she is also a board member of the Coeliac Society of Ireland and chair of their Clinical Advisory Board. Richelle was diagnosed, in 2018  at age 47, with YOPD just after she had her second child. She attended the World Parkinson’s Congress in Kyoto and felt motivated by the wonderful community of researchers, medics, health professionals and PD advocates to get involved with raising awareness about PD, in particular focusing on nutrition for PD. She is a member of the Dublin Parkinson’s committee and is an active member of Young Parkinson’s Ireland. Through living as a person with both coeliac disease and PD, she understands both conditions from both receiving medical & AHP care and delivering care for people with chronic disease

 

Dr. Rebecca Miller

Rebecca (Becca) Miller, Ph.D.is a licensed clinical psychologist and Assistant Professor at the Yale School of Medicine, Department of Psychiatry. She received her masters and doctorate from Long Island University, Brooklyn. Becca was diagnosed with Young Onset Parkinson’s Disease, at age 39 when her daughter was 9 months old, and after living with symptoms undiagnosed for 10 years prior. She has served as a delegate and spoke on YOPD and parenting at the World Parkinson Congress in Portland, OR and Kyoto, Japan. She lives in New Haven, CT with her now 7-year old daughter.

 

Larry Gifford

Larry Gifford, 48, lives in Vancouver, British Columbia, Canada. He was diagnosed with Young Onset Parkinson's disease (YOPD) at age 45. Since his diagnosis he launched the podcast "When Life Gives You Parkinson's. (https://curiouscast.ca/podcast/160/when-life-gives-you-parkinsons/#listen) He is on the Michael J Fox Foundation’s (MJFF) Patient Council and travels the U.S. as host and moderator of MJFF’s Parkinson’s IQ + You events. He’s on the
Board of Directors of the Pacific Parkinson’s Research Institute. Larry is a vocal advocate for Parkinson’s awareness and research having participated in more than 100 radio, TV and web interviews. He is married to Rebecca and they have a 10-year old son Henry. In addition to his advocacy and family, Larry is the National Director of Talk Radio in Canada for Corus Entertainment.

 

Tim Hague

Tim is a retired nurse of 20+ years who devotes his time to professional speaking, writing and as founder of the Parkinson’s wellness centre, U-Turn Parkinson’s. He is the author of the bestselling book Perseverance: The Seven Skills You Need to Survive, Thrive and Accomplish More Than You Ever Imagined. He has spoken for Tedx and is sought after across North America for his motivational and inspiring topics, Live Your Best and The Power of Perseverance. After having been diagnosed with Young Onset Parkinson’s Disease at the age of 46 Tim and his son went on to win the first season of the
reality television series The Amazing Race Canada. He is an outspoken and effective advocate on behalf of people living with Parkinson’s around the world. To learn more about Tim’s work visit www.TimSr.ca and www.UTurnParkinsons.org

 

Charlotte Maria

Charlotte Maria is the founder of PD Kinetics. It is her ability to blend her professional skills together with her personal deep understanding of the debilitating and restrictive nature of Parkinson’s which has enabled her to construct programmes specifically aimed at dealing with the many symptoms it can present. She has personal experience in dealing with Parkinson’s daily supporting her mother. PD Kinetics rehabilitation and physical strategies whilst achieving positive mind set for the future.

She is a sports science guest lecturer and a member of the Applied Science and Advanced Research Team in London. She has expertise in Parkinson’s and other neurological conditions and psychology.
Charlotte Maria has trained highly skilled practitioners and pioneered PD Kinetics undergraduate degree for physiotherapist teaching the concept of the Mind2Muscle connection, physical and psychological strategies.

Alistair MacFarlane

For more than 10 years I have been the Exercise Referral Manager for Everyone Active in Bristol. Following graduation from the University of Wales Swansea with a degree in Sport Science I have worked in the area of my passion - health and fitness.

My Exercise Referral scheme operates at 4 leisure centres in the city where, working with doctor surgeries and local health partners, we deliver exercise programmes for those referred by their medical professional. The scheme aims to increase the physical activity of people with varying health conditions to help improve their health. The scheme receives more than 1000 patient referrals a year, all with the aim to improve their health conditions and return to a healthy lifestyle. The scheme was honoured with the “Healthy Lifestyle Award” at 2017 Bristol Health and Care Awards and I was inducted in to the Bristol Active City Hall of Fame in 2018.

In 2014 I set up a low intensity exercise class for people with neurological conditions – primarily Parkinson’s disease and Multiple Sclerosis. It was through this class that I become involved with Parkinson’s UK and now sit on the committee of the Bristol branch as their physical activity coordinator. My work with Parkinson’s UK lead me to PD Warrior where I became accredited in in 2016 and in early 2018 I jointly set up PD Warrior – Bristol UK at the Bristol Brain Centre at Southmead Hospital. In the summer of 2018 I then set up a PD Warrior class at Henbury Leisure Centre in Bristol followed by a second leisure centre programme in Bristol at Horfield Leisure Centre. To date it is the only PD Warrior programme to be running outside of the NHS or private physiotherapy clinics. My PD Warrior classes have been shortlisted for the “Best Innovation Award” at the 2018 Bristol and Bath Health and Care Awards.

I also deliver award winning programmes for cancer rehab and falls prevention, and manage cardiac rehab, respiratory disease and diabetes exercise classes. I am a member of CIMSPA.

 

Karen Green

Karen has worked in clinical practice in The National Hospital for Neurology & Neurosurgery, Queen Square, London, specialising in many areas of neurology & neurosurgery including critical care for the past 18 years. She was one of the founding members and a former chair for the Neurosciences Specialist Group of the British Dietetic Association (BDA). She has written for many nutrition publications such as  Complete Nutrition, The Manual for Dietetics and developed the British Dietetic Association Guidelines for Parkinson’s Disease. She has  collaborated with Parkinson’s UK on a number of resources for Parkinson’s Disease and most recently presented gastro-intestinal disturbance in Parkinson’s disease. Her focus is now on developing a pathway to include dietetic access for patients pre and post DBS surgery. 

 

Josefa Domingos

Josefa is a physiotherapist specializing exclusively in Parkinson disease for more than 15 years. Her career has focused on creating and implementing specialized care for people living with Parkinson. Josefa has been the National Health Coordinator at the Portuguese Parkinson's Patients Association since 2006, and she founded more than 8 Parkinson's specialised services throughout the Association branches all over the country. She was appointed as an EPDA Board Observer in 2019. As an educator, clinician and researcher, she is currently finishing her PhD on Practicalities of Community-based exercise in Parkinson's at Radboud University Centre (The Netherlands), under the supervision of Professor Bastiaan Bloem.

 
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